INFORMATION AND SUPPORT FOR FAMILIES

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  • About
    • Latest news
    • History
    • The Charity
    • Our Trustees
    • Family Days
  • New Parents
    • Pre-natal Notice: possible DSD
      • What to expect when you are expecting
    • Early Days/Newborn
      • Why might DSD happen?
      • Diagnosis
      • Talking -friends & family
        • What to Say?
      • Moving Forward
      • Timeline
        • Terminology
    • Adolescent Diagnosis
  • Parents
    • Yes to Talking
      • Timeline for talking- 0-6 years
        • 7-10 years
        • 11-14 years
        • 15+ years
    • What is DSD?
      • Implications for my child
      • Brief Overview of DSD conditions
        • Revisit if no diagnosis obvious
        • Do I have to understand this?
        • Conditions
        • Sex Chromosomes DSD
        • 46,XY DSD Testes Development
        • 46 XY, DSD Hormone production
        • 46, XY DSD Sensitivity to Androgens
        • 46,XX DSD
      • Story of Sex Development
      • Dictionary- DSD terms
    • At the Hospital
      • Other health professionals
      • Transition
    • Children's books
    • Raising a child- without/ with surgery?
    • School
      • Starting school- story
      • Thomas' Story
  • FAQ
  • Resources
    • notepad
  • Donate
  • Cookie Policy
  • About
    • Latest news
    • History
    • The Charity
    • Our Trustees
    • Family Days
  • New Parents
    • Pre-natal Notice: possible DSD
      • What to expect when you are expecting
    • Early Days/Newborn
      • Why might DSD happen?
      • Diagnosis
      • Talking -friends & family
        • What to Say?
      • Moving Forward
      • Timeline
        • Terminology
    • Adolescent Diagnosis
  • Parents
    • Yes to Talking
      • Timeline for talking- 0-6 years
        • 7-10 years
        • 11-14 years
        • 15+ years
    • What is DSD?
      • Implications for my child
      • Brief Overview of DSD conditions
        • Revisit if no diagnosis obvious
        • Do I have to understand this?
        • Conditions
        • Sex Chromosomes DSD
        • 46,XY DSD Testes Development
        • 46 XY, DSD Hormone production
        • 46, XY DSD Sensitivity to Androgens
        • 46,XX DSD
      • Story of Sex Development
      • Dictionary- DSD terms
    • At the Hospital
      • Other health professionals
      • Transition
    • Children's books
    • Raising a child- without/ with surgery?
    • School
      • Starting school- story
      • Thomas' Story
  • FAQ
  • Resources
    • notepad
  • Donate
  • Cookie Policy
  1. Pre-natal Notice: possible DSD
  2. What to expect when you are expecting
  3. Early Days/Newborn
  4. Why might DSD happen?
  5. Diagnosis
  6. Talking -friends & family
  7. What to Say?
  8. Moving Forward
  9. Timeline
  10. Terminology
  11. Adolescent Diagnosis

Timeline

Above are quotes from parents of what they would have liked to know in those first days and weeks after their baby was born.

  • PARENTS

    PARENTS

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  • NEW PARENTS

    NEW PARENTS

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  • TEENS

    TEENS

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  • RESOURCES

    RESOURCES

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  • DONATE

    DONATE

    donate

dsdfamilies receives funding from the following organisations

Glasgow Hospital National Lottery Children in Need Society for Endriconolgy


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