Our School Guide has been produced for families wishing to discuss the specific needs of their younger child with the school, for young people wanting to talk about their dsd with school and for schools who are considering covering the subject of ‘Differences in sex development/intersex traits’.
Anyone can map their own sex development using The Story of Sex Development. This resource breaks down sex development in small steps. A young person learning about his or her body, or the parents of a little baby with genitals that look different can easily trace development from tiny embryo to birth. Doctors and healthcare professionals can use this booklet too. (Japanese Translation can be downloaded here)
First days DSD booklet is available in multiple languages (click on the filename to download): Arabic, Bulgarian, Catalan, Dutch, French, German, Norwegian, Polish, Portuguese, Russian, Spanish, Swedish, Turkish, Urdu and Japanese.
Top Tips for Talking with children about Differences of Sex Development.
Listen To Us. 2019 consultation report
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Other selected resources, interviews, guest posts and blogs by dsdfamilies
- Facebook Groups - Information about our family networks on facebook. If you are a health care professional, feel free to print out this information to hand to your families in clinic or send out by email.
- Mumsnet ‘Differences in sex development’ (DSD) – what does it mean? - In this guest post, Kate Davies, Senior Lecturer at London South Bank University and Trustee for the charity and patient support group dsdfamilies, explains what Differences in Sex Development means.
- Knowing me, knowing you - how does a girl with a Y chromosome manage biology classes at school? Very well thankyou.
- Dealing with DSD - an article from Midwife Magazine 2015, by Julie Griffiths
- An interview on Radio 4 about Children with a DSD - Listen to the programme for more information on the biological/medical aspects of DSD, and for a perspective from a psychologist and from the father of an affected child. A transcript of the show is also available via this link.
- 'Amazing you... the story so far' - has been co-written for Sophie, by a parent and a clinician, with input from other parents, adults and healthcare professionals.
- 'Amazing you...the story so far' (Polish version)
- Working Together - providing an insight into becoming parents and with practical suggestions re raising a child.
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External resources
- CAH - supporting people with CAH, their families and friends.
- I have CAH - by Emma - 10 years old
- Klinefelter's Syndrome - offers support and information to all affected by, or having an interest in, Klinefelter’s Syndrome (KS) and XXY.
- Turner Syndrome Support Society - provides accurate and up-to-date information on Turner Syndrome and the many aspects of living with the condition on a daily basis.
- FAQ from families by HEA - parents of children with peno-scrotal hypospadias might find the information and tips on the HEA website helpful. HEA is the American Hypospadias and Epispadias Organisation. (This is very useful for parents of boys born with severe hypospadias.)
- The American support group AIS/DSD - supports all children, whatever their DSD diagnosis. Here you find some more information about educating and sharing information with children.
Children’s books about body image, body confidence and celebrating differences
