INFORMATION AND SUPPORT FOR FAMILIES

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    “We need a community – we need to meet other families, our kids want to meet other kids”

    ARE YOU A NEW PARENT?

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    PARENTS

    Our aim is to connect you with information and people, including other families and healthcare professionals, to support children, teens and young people affected by what doctors sometimes call dsd.

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  • "I just got a letter with my son’s diagnosis. That was it. A letter. I needed someone to talk to, to talk to me."

    dsdfamilies have been asking young people living with a dsd, and their families, about their information and support needs. Above is what people have said.

  • " We would like buddies, we have them at our primary school – a friend who looks out for you."

    dsdfamilies have been asking young people living with dsd conditions, and their families, about their information and support needs.

  • "Can we have some positive public awareness? I am proud of my kid, how do I get that across?"

    dsdfamilies have been asking young people living with a dsd, and their families, about their information and support needs.

  • "I feel I want to share, (the diagnosis) but it needs to be in our daughter’s best interests. It’s her information."

    dsdfamilies have been asking young people living with a dsd, and their families, about their information and support needs.

  • TEENS

    TEENS

    Our amazing sister site DSD Teens was designed by and for young people with DSD to learn about their bodies. 

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  • LATEST

    LATEST

    Our most recent news, events and publications.

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  • DONATE

    DONATE

    Can you help support our direct work with children, young people and their families?

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