An information and support resource for families with children, teens and young adults who have a DSD
- » MEDIA
dsdfamilies would be delighted to assist the media in any way possible to inform the world that our lovely small babies, toddlers, young children and teens are just that, nothing more and not something to be feared or uncomfortable about. We believe that journalists have a great deal of influence on the general perception of things, and want to work hand in hand with you to re-educate society to the understanding that different is not bad.
If you are a member of the media and want to write a piece about us, we have several contacts in the clinical fields, and some parents who want to get the message out there, so please contact us on firstname.lastname@example.org and let us know how we can help.
Take a look at what's already been compiled for you, in terms of language that is inflammatory, ways of approaching people with a very sensitive condition, do's and don'ts and so on. AISSG UK has produced some media guidelines covering quite a few common mistakes. You can find info here. Coverage on Caster Semenya was often very poorly executed, and led to two further documents with suggestions on how you can provide accurate and supportive coverage on these issues. You can find this here and here too.
Come in, and look at what we have here on this website, and help us get the word out! This condition is no more inexplicable than diabetes- both are hormonal anomalies.
The volunteers of dsdfamilies
Please find below materials that might be useful to sport journalists. Please support our children and our families by covering these issues correctly and sensitively.
By Rebecca Jordan-Young and Katrina Karkazis, published in the NY Times, 17 June 2012
Out of Bounds? A Critique of the New Policies on Hyperandrogenism in Elite Female Athletes, by Katrina Karkazis, Stanford Center for Biomedical Ethics (US); Rebecca Jordan-Young, Barnard College (US); Georgiann Davis, Southern Illinois University at Edwardsville (US); and Silvia Camporesi, King’s College London (UK). The American Journal of Bioethics, 12(7): 3–16, 2012
Abstract: In May 2011, more than a decade after the International Association of Athletics Federations (IAAF) and the International Olympic Committee (IOC) abandoned sex testing, they devised new policies in response to the IAAF’s treatment of Caster Semenya, the South African runner whose sex was challenged because of her spectacular win and powerful physique that fuelled an international frenzy questioning her sex and legitimacy to compete as female. These policies claim that atypically high levels of endogenous testosterone in women (caused by various medical conditions) create an unfair advantage and must be regulated. Against the backdrop of Semenya’s case and the scientiﬁc and historical complexity of “gender veriﬁcation” in elite sports, we question the new policies on three grounds: (1) the underlying scientiﬁc assumptions; (2) the policymaking process; and (3) the potential to achieve fairness for female athletes. We ﬁnd the policies in each of these domains signiﬁcantly ﬂawed and therefore argue they should be withdrawn.
- Olympics Season
Some do's and don'ts for people writing about DSD:
- Don't refer to our children as: Hermaphrodites, suffering from testicular feminization, or any other derogatory expression. Instead discuss: Differences in foetal development, differences in sex development, variations in sex development
- Don't say things like 'she is really a boy' because this is not true. Instead put it this way:
- Assuming that a child with xy chromosomes is a boy is generally accepted, however, this is not always the case.
- Some people with xy chromosomes have no reaction to androgens and as a result develop into women.
- Don't assume someone with this condition can choose to be a boy or a girl. A person is what a person is and there is no choice involved.
- Do accept us as we are: don't ask for evidence. No one wants to describe genital formation.